Page Icon Australasian Psoriasis Registry Current User: (No-one)
Welcome & Login Version: 1.05.07
Login to the Psoriasis Database

User Name:


Password:



Welcome to the Australasian Psoriasis Registry

APR Users Manual

The User's Manual can again be viewed as a PDF or Word document, and saved locally if desired.

To open the User Manual, Click on the Documents link in the Administration tab at the top of the window.



Click on the Click to Open link beside the PDF or Word versions of the manual and this document will open in a new window.


An updated version of the Australasian Psoriasis Registry User's Manual, incorporating changes and new screen layouts from the latest upgrade is currently being written. The updated manual will be uploaded to the Registry when completed.

  

Contact Details and Background Information

CONTACT DETAILS: 

Associate Professor Chris Baker, Associate Professor Peter Foley 

Australasian Psoriasis Registry, 80 Drummond Street, Carlton Victoria, 3053   Telephone: (03) 9623 9400

 To participate in the Registry, please contact Simon Cumming  scumming@skincancer.asn.au

 

The Australasian Psoriasis Registry aims to develop a comprehensive Australasian database of patients being treated for psoriasis.

The advent of the biologic agents, the need to track health outcomes of patients we commence on systemic agents, and the growing recognition of significant co-morbidities in psoriasis sufferers, has lead to the development of registries throughout the world. 

 

By collecting long-term information about patients’ psoriasis management, their health and quality of life, the Australasian Psoriasis Registry aims to provide reliable and valid outcome data to Australian and New Zealand doctors, consumers, policy makers, industry, and approval agencies. The project focus is on the long-term safety and efficacy of established and new generation ‘biologic’ drugs, and the impact of living with psoriasis.

 

A pilot conducted in 2008 collected data on 113 patients from St Vincent’s Hospital Melbourne, the Skin and Cancer Foundation Inc. and a private practice in Queensland. A report was prepared and distributed to stakeholders and the database refined and simplified for the national rollout.

 

The Registry was developed in consultation with a number of College Fellows, several overseas centres and a local software designer and provides:

·                An innovative and unique web based online database

·                An application that will allow clinicians or nurses to securely enter data from any location with internet access

·                A centralised administration that will manage user access, quality control of data and facilitate auditing and reporting

·              A Committee of Trustees to oversee management of the project and access to data

 

 

Patient Information and participation

Information is collected about patients’:

·            general health status

·            the status of their psoriasis

·            quality of life

·            the treatments that they are receiving, and have received previously

 

The Registry will ensure that privacy and patient information is respected and that appropriate ethics approvals are obtained for individual sites. 

 

Benefits of Participating in the Registry

·            To be part of a collaborative Australasian Research project

·            Collection of health and treatment data from psoriasis patients

·            A tool to assist clinicians’ with patients management

·            A valuable audit activity

 

 

 

CONTACT DETAILS: 

Associate Professor Chris Baker, Associate Professor Peter Foley 

Australasian Psoriasis Registry, 80 Drummond Street, Carlton Victoria, 3053   Telephone: (03) 9623 9400

 To participate in the Registry, please contact Simon Cumming  scumming@skincancer.asn.au

 

 

The Australian Psoriasis Registry is supported by

Epiderm and the Skin and Cancer Foundation Inc.

   

 

Additional funding has been obtained from the pharmaceutical industry and we acknowledge the support of:

Abbvie, Amgen, Celgene, Eli Lilly, Janssen-Cilag, Novartis and Pfizer.

 

The Australian Psoriasis Registry is endorsed by